Data Transparency Winter Event 2025
- Alex Pearce
- Lucy Marks
- Nicola Newton
| Data Transparency Winter Event 2025 |
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The Data Transparency Winter Event took place from 4–6 February 2025. This virtual event provides a platform for attendees and presenters to foster meaningful interactions and collaborate on ideas. Presentations were delivered across the three days in bitesize chunks. Watch this space for all of the links to the event recordings and presentations, which will be uploaded soon! The Winter Data Transparency event presentations and recordings can all be found here. Visit the PHUSE Archive for all previous event recordings and presentations. |
| Date | Presentation | Author(s) |
Day 1: 4 February Theme: Data Privacy and Anonymisation Techniques | Improve Data Quality and Explainability Based on Quantitative and Qualitative Assessments of Re-Identification Risks | Louis Philippe Sondeck, Clever Identity |
Reducing Regulatory Uncertainty Around Anonymisation: Perspectives of Canadian Privacy Regulators | Lisa Pilgram, University of Ottawa | |
Data Anonymisation Techniques and Experiences | Anju Bhatia & Swetha Ram, Novo Nordisk | |
The Emperor's New Clothes: Unveiling the Risks of Anonymisation in Clinical Trial Data | Lora Killian, Pfizer | |
Day 2: 5 February Theme: Transparency and Accessibility in Clinical Research | Clinical Trial Results at CTIS: Analysis of Compliance with Annex IV of EU CTR 536/2014 | Shalini Dwivedi, Krystelis |
| Collaborative AI Networks for Global Clinical Trial Transparency Operations | Woo Song, Xogene | |
| Strategies for Enhancing the Accessibility of ClinicalTrials.gov | Samantha Toscano and Megan Larkin, Biogen | |
| Considerations for Using AI to Create Lay Summaries of Trial Results | Kimbra Edwards, CISCRP and Julie Holtzople, Holtzople Consulting | |
Day 3: 6 February Theme: Data Sharing, Compliance, and Synthetic Data | Medical Imaging Data Sharing and De-Identification: The BioData Catalyst® Data Management Core Experience | Zixin Nie, RTI International |
| Ensuring Privacy with Meaningful Synthetic Data for RAVE EDC | Jaskaran Singh Saini, GENINVO | |
| AI in Action: Transforming Data Privacy and Compliance in the Pharmaceutical Industry | Zach Weingarden, TrialAssure | |
| Content Analysis of Free-Text Patient Data in CSRs to Assess Automated Anonymisation Approaches | Nastazja Laskowski, University of Manchester in Collaboration With Roche |
| Sponsorship |
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Hosting the Data Transparency Event digitally means that no matter where you are in the world you can participate. It provides the industry with a broader opportunity to share knowledge on a global scale, connecting through the virtual event platform. The sponsor options offer a range of benefits with ample company exposure. See the prospectus for more detail.
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| Would You Like to Become a Sponsor? |
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If you would like to sponsor the event, please complete your application here. |
| Data Transparency Winter and Autumn 2025 Virtual Event Sponsors |
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| Sponsor Flyers | |
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| Data Transparency Working Group Leads |
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