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Data Transparency Autumn Event 2024 – Registration now Open

The PHUSE Data Transparency Autumn Event took place from 17–19 September 2024. During this virtual event, presentations were delivered across the three days in bitesize chunks. Each day also hosted a panel discussion and Q&A session focused on the day's themes.

Presentations and event recordings will be available soon. 


Agenda 
Presentation TitleSpeaker(s)
Day 1 – 17 September
Event-Based Access Control – Game Changer for Autonomous Security and Transparent Data SharingAmit Gautam, Abluva
Rare Disease Data – Overcoming Barriers to Controlled Access SharingHelen Spotswood, Roche & Karolina Stępniak, AstraZeneca
Optimising the Utility of Anonymised Data: A Clinical Case StudyLisa Pilgram, University of Ottawa
Diversity in Clinical Trial Data Transparency: A New Horizon for Data Sharing with Truthful StatisticsLuk Arbuckle, Privacy Analytics & Stephen Bamford, Johnson & Johnson
Day 2 – 18 September
Disclosure Without Exposure – Upstream Strategies for Enabling AI to Effectively and Efficiently Protect Clinical DataHonz Slipka, Certara
Harnessing the Power of Artificial Intelligence (AI) in Accelerating Production of Clinical Documentation: A Case Study with Plain Language Summaries (PLS)Kathi Künnemann, Staburo
De-Identification of Medical Data for AI Training, Speeding Up Clinical Trials, and Enabling Healthcare Research

Patricia Thaine, Private AI

Leveraging Agentic AI Networks to Automate Transparency ActivitiesWoo Song, Xogene
Day 3 – 19 September
Privacy Methodology Implementation: Sharing Experience from the FieldVéronique Poinsot, Sanofi
True Re-Identification Risk Threshold – Aggregated-Level Clinical Information Impact on Anonymisation Methods Applied to Individual Patient-Level Data (IPLD)Agnieszka Głowińska & Łukasz Szyszka, AstraZeneca
Writing Better CSRs to Facilitate Anonymisation for Clinical Data PublicationCathal Gallagher & Laura Dodd, Instem
A Data Transparency Odyssey - A Decade of Data SharingAlex Hughes, Roche & Brent Caldwell, Novartis

Data Transparency Autumn Event Sponsors 

Virtual Event Sponsors


Sponsor Flyers 

                                                                  


Sponsorship 

Hosting the Data Transparency Event digitally means that no matter where you are in the world you can participate. It provides the industry with a broader opportunity to share knowledge on a global scale, connecting through the virtual event platform. The sponsor options offer a range of benefits with ample company exposure. See the prospectus for more detail. 

Data Transparency Working Group Leads

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